Too often, women with endometrial cancer (EC) have reported that their symptoms were stigmatized and dismissed. Even though diagnoses and deaths from this type of uterine cancer are on the rise, it remains under-recognized.
Spot Her is an initiative to help end the silence around endometrial cancer. We aim to embrace the power of every woman’s voice to take a stand on this important women’s health issue. Together we can educate, support, and build strength through community.
When women rally around a cause, change happens. Join us in our pledge to #SpotHerforEC and raise our voices around this serious cancer—for the women we love and the women we are.
For every post shared using #SpotHerforEC, Eisai will donate $1 (up to $20,000) to FORCE and SHARE who provide support for women living with endometrial cancer. By helping raise awareness for endometrial cancer, you’re also helping to support the mission of these organizations.
I pledge to #SpotHerforEC! Will you? Click to see how you can help the women in your life spot some of the potential signs of endometrial cancer. Tweet
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Found in the lining of the uterus, endometrial cancer is considered a type of uterine cancer. Uterine cancer is the 4th most frequently diagnosed cancer for women in the U.S. In 2020, uterine cancer resulted in about 65,000 new cases and 12,500 deaths—and these rates are on the rise.
Endometrial cancer occurs most commonly among women who have gone through menopause, but it can also occur much earlier. In fact, diagnoses are on the rise among younger women between the ages of 20 to 49, when fertility may be an important concern.
Thousands of mothers, aunts, sisters, and friends are impacted by this serious disease. It’s time for all women to know about endometrial cancer, because early detection can mean identifying the cancer when it may be more treatable.
Women with endometrial cancer have reported that their symptoms were often stigmatized and dismissed. By talking about these "below the belt" symptoms, we can empower others to spot the signs early and take action, when it may be more treatable.
Vaginal bleeding, spotting, or brownish discharge after menopause
Irregular or heavy bleeding in younger women before menopause
Pelvic pain or pressure
*These are not all of the possible symptoms of endometrial cancer.
Symptoms common in later stages can include feeling a mass and/or losing weight without trying.
Increasing awareness about the potential signs of endometrial cancer is important for Black women, as only 53% of Black women with the condition receive an early diagnosis. A delay in diagnosis could make the disease more difficult to treat.
These symptoms could be easily overlooked or mistaken for other conditions, so it’s important to speak with a doctor as soon as they arise. These symptoms are not necessarily indicative of endometrial cancer, and can be caused by other conditions, but it’s important to talk to your doctor about any symptoms of concern.
Learn about your family health history
Know your body, and document any symptoms of potential concern as they happen
Visit your gynecologist regularly. After menopause, talk to your doctor about how often you should visit your gynecologist.
It’s important to be aware of factors that may increase the risk of developing endometrial cancer and talk to your doctor about any risk factors of concern.
A family history of certain conditions could mean a higher risk of endometrial cancer. A high-risk factor for endometrial cancer includes a family history of Lynch syndrome, also known as hereditary nonpolyposis colon cancer (HNPCC).
Other genetic risk factors include (but are not limited to) mutations or changes in the PTEN gene. PTEN is a protein that helps control many cell functions, and is considered a tumor-suppressor. People with an inherited PTEN mutation may have a condition called Cowden syndrome.
Genetic counseling can give you information about how genetic conditions might affect you or your family, and genetic testing may help you to better understand if you might have an inherited risk for endometrial cancer. Women should consult with their doctor about whether to receive genetic counseling and testing. To get more information on genetic risk factors for endometrial cancer, as well as information on genetic counseling, visit Resources below.
The above stories are from real patients who were diagnosed with endometrial cancer and are based on their individual experience.
Have your own Spot Her story? Share on social with #SpotHerforEC. For every social post, Eisai will donate $1 (up to $20,000 total) to FORCE and SHARE.
Additional resources are available from FORCE, SHARE, and Black Health Matters.
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